I attended the AIDS Walk Charlotte 2011 run by RAIN (Regional AIDS Interfaith Network) this morning. I’ve attended a few AIDS and HIV awareness walks and benefits over far too many years, including RAIN’s own Gay Bingo last year.
We started early meeting a the Gateway Village Atrium which is a lovely open space in (I’m guessing) downtown Charlotte. It was here that the first of a few concerns started to hit me. The first being that hardly anyone was there. Dont get me wrong, there were loads of very enthusiastic volunteers, including Wesley, who had been there since the crack of dawn to make sure the event went well. However, in terms of walkers, there was maybe (and, again, I guess as I don’t have the complete numbers yet) 1500 people. In a town as big as Charlotte (pop roughly a million plus) with an extremely large gay population (way more than similarly sized Adelaide) this was a pitiful number. The weather was beautiful. No excuses there.
The next thing that I noticed was the speaker system was inadequate for the venue. Perhaps people closer to the front heard what people were saying but the speakers where I stood allowed only white noise. I had no idea, from what people were saying, about the event. A minor complaint but a fair one.
The walk started, described as a 2 mile walk “through historic Fourth Ward in memory of those who have finished their journey.” (Quote taken from the official website). And the walk was when I got really, really, really mad. I am not sure what historic Fourth Ward is however the walk I took encouragingly started off heading towards the city proper then took a sharp left turn away from the city centre and walked past some neighbourhood houses (no one there), some closed shops (no one there), a factory (no one there), a cemetery (no one alive there), a bridge and some trees. Then we were back at Gateway. By which time I was furious.
In the entire two-mile walk, with the exception of the police who had blocked the roads and the very few cars (three cars I counted – that’s three drivers!) impeded by the walk, no one saw us. NO-ONE!!!! We rose awareness to some trees and a bridge. I was embarrassed and angry at this route. When I suggested to my friends walking that this was infuriating I was told we need to “take small steps to awareness.” “This is Charlotte.” “It takes time.” You know what though.
Bullshit.
Charlotte, as far as I can tell (and Wesley who devotes his life to the treatment of HIV and AIDS clients, will confirm for me) is a beautiful city with a population of roughly a million, 8000 of whom are infected with HIV. 6600 know they are infected. The infection rates continues to rise. Risk of infection and awareness of decreasing this does not occur by having a walk which literally screams we are embarrassed for our existence. Even assuming the walk was diverted to the back streets of Charlotte for the sake of traffic remains a pitiful excuse. I have not been in a city that needs more education and awareness of decreasing risk of HIV than Charlotte. To then have the major network of support (presumably) acquiesce to whatever pressures are imposed on them to not allow them to walk proudly through the streets of Charlotte and actually RAISE AWARENESS of the disease and prevention is so, so, so sad.
I have never been in a walk that was so depressing. Not because of the illness we were supporting but the embarrassment with which it seemed to be held.
Another final thing, if anyone from RAIN actually reads this. AIDS and HIV awareness has moved forward all over the world in acknowledgement of the fact that the disease is no longer a death sentence, that people with HIV lead wonderful, fulfilling LONG lives with the benefit of adherence to treatment and todays improved medication regimes. As such HIV and AIDS benefits I have attended over the world now focus on the positives of the disease rather than focussing on the (truly tragic) deaths that preceded the increased medical support. To this end they have changed their names from AIDS to HIV, emphasising the hope of the disease and the positive lives people now lead with the illness. Some names other cities are now using are: Walk for Life – Finding the Cure, Hike for Hope, Hike for HIV, etc. I found this event still looking backwards, if I am honest.
If by chance you read this, please consider moving forward with your focus. There is still time to honour the dead however today should be about celebrating the lives and continued health of people living with HIV. AIDS no longer equals death. It means life with illness, like diabetes, or epilepsy… I humbly suggest your message should emphasise that now.
And you should walk proudly. No more in the shadows. Next time I do the walk for you I want people to see me.